Hi Everyone,
WEll its day 105 and i have very good news to report --I AM IN REMISSION__YEA,YEA,YEA!!!!!!!. i had a bone marrow biopsy on Monday and a skeletal survey and lots of blood work done and i got the results today. All are normal. The bone marrow biopsy shows 1% myeloma cells and the blood work is all in normal range and my skeletal survey was good but i have to have infusions of Aredia every two months to keep my bones Strong. So basically my doctor says i am in remission. He tried to contact my SCT doctor but he was unavailable--to discuss how to keep me in remission--what maintenance drugs to use so i will probably get a call on that tomorrow. Anyhow i will leave for LAs Vegas on April 22 to celebrate!!!! Thanks to all who wished me luck and got me thur this. i will continue to update you from time to time. feeling good ---Susan
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3 comments:
Hi Susan
Congratulations on your great result - have a great celebration in Vegas!
I'm still awaiting my results but so far there hasn't been much change. My Onc wants to put me on Velcade & Dex
Kind Regards
Henk
Great going, Susan!
Dear Susan,
First, congratulations on your remission!! Way to go!!
My name is Jenny Desmond and I am part of an online community called CarePlace, for people with similar health concerns and their caregivers. I came across your blog and story and want to introduce you to our site.
We have recently opened a new Multiple Myeloma community and forum and would love to hear what you think. We are excited to offer a unique online support network for those with MM. As your blog relates to what we are doing at CarePlace, I wonder if you might visit our site and let me know if you think it might be helpful to the people who communicate through and with you.
At CarePlace, you can create your own webpage, join multiple communities, share an online journal with family members and friends and chat live with other members, in addition to sharing and supporting. CarePlace is a great resource for the exchange of ideas and information.
It’s important to us to get feedback from people like you about CarePlace as we develop our site. Site address is www.CarePlace.com. Please add me as a friend (profile name Jen D). I would very much appreciate any insight and thoughts you have about our organization and the site.
Thanks in advance!
Jenny (jend)
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